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ADDNET UK

ADDNet is the UK's national Web-site for Attention Deficit (Hyperactivity) Disorder - AD/HD.

It has been set up by volunteers comprising of Individuals, Professionals and Support Groups.

The purpose of the Web Site, run for the benefit of the whole AD/HD community, is to be a common point of reference for information and intelligent debate on AD/HD in the UK and to provide a rapid means of communicating between the UK Support Groups and the UK AD/HD Community. It is, hopefully, of use to ADDers and their families (especially those new to AD/HD who may need guidance on who and where in their area to turn for help and/or information), as well as Health and Education Professionals and the Media (International visitors’ are welcome too).

The Internet has various sources of information on AD/HD that can be extremely useful for those seeking to find out what it all means, but much of this information has a heavy American bias due to their more advanced national awareness’ of AD/HD and larger Internet presence. The excellent Compuserve AD/HD Forum’ for instance, regularly receives messages asking for help from UK members wanting details on UK Support Group, Doctors and Schools etc. ADDNet UK is designed to meet this need and fill the conspicuous gap in UK AD/HD material not previously available on-line.

We also run a mobile 'advisory' service and an event 'road-show' demonstration for UK Groups, Schools and Organisations interested in connecting to the Internet to access on-line services and AD/HD information. We can bring a powerful portable computer to your School or event (etc.) to demonstrate what is available on the World-Wide-Web, provide information on AD/HD, advise on the best method of connection and equipment appropriate for you (and provide some free software). There is no charge for these services, although a donation towards incurred travelling expenses etc. is appreciated.

ADDNet subscribes to the principles of the Health on the Net’ code of practice and clearly advises visitors’ that information is not intended to replace qualified professional help. We are also proud to say that we have received several Internet awards.

Building and maintaining a Web presence costs money, but it is intended that the ADDNet UK service always remains entirely free to Support Groups and the public. The web site is presently funded by private donation not by advertising, or money from any pharmaceutical companies. In this way we retain our complete editorial independance. If we recommend a product or service, it is because we genuinely feel it is of use to our readers.

You may freely use, download, copy, distribute and 'link' to anything you find on the ADDNet UK web site. The ADDNet UK team welcome Contributions and Feedback’ from any source. We ask all our contributors to release their material to the public domain, so that interested people may freely download the information and use it themselves. Already we have had some notable contributors; (Dr Paul Hutchins, Dr Geoff Kewley, Thom Hartmann, Howard Morris, Alan Train, Dr. Scott Borrelli, Frank Kannemann, Dr P.Cosgrove, Berkshire AD/HD Research Group), and the list is growing! We ask that anybody downloading material but does not edit it in any way that changes the authors original intent. Credits to ADDNet (with a link tohttp://www.web-tv.co.uk/addnet.html), and also a credit to the original author, would be greatly appreciated. It is also nice to know where our stuff ends up! So please drop us a line: addnet@web-tv.co.uk

How much the UK AD/HD community benefits from it, lies with us all. SoPLEASE send in ANYTHING that you think may be of interest to others. So far, the following areas are available on-line:

AD/HD information library

  • General information on Attention Deficit (Hyperactivity) Disorder (What it is, what it isn't and how to deal with it).
  • Advice for Parents, Teachers and ADDults.
  • Frequently Asked Questions’ (FAQ's) about the Disorder.
  • Information on Associated Disorders’ (Such as OCD and ODD).
  • Diagnostic criteria for AD/HD (such as the American DSM IV).
  • New Research material and other scientific papers.

UK support groups

  • General information on.. (and good reasons to join a..) UK AD/HD Support Group.
  • A list (by County) of contact details for all UK AD/HD Support Groups.

UK DOCTORS AND SERVICES

  • A list of AD/HD aware’ Doctors, Psychiatrists, Psychologists, Schools and services.

UK AD/HD NEWS

  • News relating to AD/HD with a National or International relevance or interest.

UK political news

  • Political and Policy issues affecting AD/HD.

UK events

  • Details of AD/HD National or International Events.

ZOOOOM! - The young person's page

We have ambitious plans for this page including a 'Pen-pals' link-up’ with other International AD/HD sites.

  • ZOOOOM! Net Club. - Contact details for international pen-pal (or email) friends.
  • Notice Board. - Members Pictures, Jokes, Poems and anything else sent/emailed in.
  • ADDvice. - School and Home survival Tips from others who have been there.

ADDNet UK feedback &contributions

  • Guidelines for ADDNet UK Contributions.
  • A customised, on-line Feedback Form.

On-line conferences

  • LIVE on-line AD/HD conferences every Thursday at 10pm GMT.
  • Periodic 'theme' nights with special guest speakers.

AD/HD internet links

  • Hypertext’ links to other Web sites or pages relevant to AD/HD.

Some areas of the site are still under construction and many changes and additions will continue as the the site will grows and evolves over time.

Communicating and working together to pool resources into an accessible 'virtual database' means that we can all provide more effective support to those in need. By acting with a more unified approach, we speak with a louder voice to help raise AD/HD awareness in the UK from the all too common’ ignorance, rumor and prejudice, to informed and intelligent debateand action.

ADDNet welcomes viewpoints from all quaters. We do not discriminate between groups or individuals because of their ideas or beleifs about how best to treat AD/HD.

This web site is open to anyone who shares these aims. It has space to list your events, advertise AD/HD related treatment centres, services, share experiences and information and list local 'AD/HD aware' doctors and support groups so people in all parts of the UK can link up with their nearest group and source of support (International visitors are, of course, welcome too). The Internet is clearly a most useful tool’ in fulfilling all these aims.

We are currently working very hard with various AD/HD organisations in the UK, on the forming of a UK 'AD/HD Alliance'. It is hoped that the alliance will be highly effective at raising the level of awareness and 'good practice' with regards to AD/HD in the UK by; improving communication between groups, political lobbying and collaborative projects we should be able to vastly improve the support available to sufferers and their families. Keep an eye on the web site for further details as soon as they are released.

We firmly believe that knowledge about AD/HD and the availability of high quality treatment needs to be urgently encouraged and promoted in the UK. One of the best ways of helping this to happen is for all those involved to work together to share information and extend collaboration to improve support, knowledge and good practice.

So far we have collections of organisations around the UK which are in many cases beginning to work together. In places like Australia, Canada and the USA it has been particularly the growth of support groups and strong alliances among them which have taken the cause of AD/HD forward dramatically in the past 10 years. We need to do the same in the UK.

By speaking with one strong and coherent voice, we can bring greater pressure to bear on the government, policy makers and service purchasers to budget for better services and more research into this all to frequently neglected and misunderstood disorder.


ADDNet UK

Contact through web page or email
addnet@web-tv.co.uk
http://www.web-tv.co.uk/addnet.html

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