ADRENOLEUKODYSTROPHY
FAMILY SUPPORT TRUST (ALD)Aderenoleukodrystrophy (ALD) is a genetic disorder which affects the adrenal
gland and white matter of the nervous system. It affects males only and
develops in boys between the ages of 4 and 10. The Adrenoleukodystrophy Family
Support Trust was set up by parents with a son with ALD. (The Trust was
formerly known as "Attia Research Trust into ALD".) It works to raise
funds for ALD research to find a cure for this life threatening disease. In
addition it offers help to ALD sufferers and their families including offering
professional babysitters and carers to give the family relief. The ALD Family
Support Trust provides information packs and equipment and caring support to
sufferers and their families. The Trust's aims and activities include the
following. - To further medical research into ALD.
- To make grants and allowances for the purposes of medical treatment and
care of children suffering from ALD.
- To educate the public about ALD, and to put parents of such children into
contact with each other for their mutual support and benefit.
- Provision of telephone support.
- Supply of information packs.
- Organising a conference and family weekend.
Adrenoleukodystrophy Family Support Trust (ALD)
36 Baker Street
London
W1M 1DG  020-7224 7112
020-7580 5089 (evenings)
 020-7486 8576
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