ANGELMAN SYNDROME SUPPORT GROUP

The Angelman Syndrome Support Group aims to help families come to terms with a child's diagnosis of Angelman Syndrome, as well as the day-to-day problems which may occur. The group intends to help parents and their families, professionals, and all who have a specific interest in this syndrome.

The group offers information and contact with other parents and passes on news and information through a quarterly newsletter.

There are regional meetings held throughout the UK which are in the form of a meeting with a speaker or an outing. Bi-annually, there is a national weekend conference which brings together families and professionals.

The video, Angelman Syndrome - and Insight, is available to all interested parties. It covers genetics, the clinical features of the syndrome, an introduction by Dr Harry Angelman, and a brief insight into coping with an AS child from seven families.

Angelman Syndrome Support Group
15 Place Crescent
Waterlooville
Hampshire
P07 5UR

023 92 264224
023 92 241977

Associated Medical Information