ASSERT - ANGELMAN SYNDROME
SUPPORT EDUCATION & RESEARCH TRUSTASSERT is the Angelman Syndrome Support Education and Research Trust, an
organisation founded for the benefit of families affected by this little known,
and probably under-diagnosed, condition. Angelman Syndrome (AS) is a chromosome
disorder that causes severe learning difficulties. Those affected have a normal
life expectancy but require looking after throughout their lives due to the
nature of their difficulties, which include communication and mobility problems
and epilepsy. On the positive side, some children are learning to communicate
with sign language and current research shows that both treatment and
prevention may eventually be achievable. ASSERT's objectives are as follows. - To produce a regular newsletter.
- To provide an information pack for doctors to give families of those newly
diagnosed with AS.
- To maintain a 24-hour, 7-day-a-week telephone support line.
- To forge links with similar AS organisations overseas.
- To hold regional meetings in different locations throughout the year.
- To establish a national register of families indicating those willing to be
a point of contact for families of those newly diagnosed with AS.
- To establish a video library of short films made about some of the
difficulties associated with AS.
- To fund research into AS.
- To eventually employ someone full-time to visit families on a regular basis
in order to provide support, advice and where possible assistance.
- To raise public awareness of AS by use of the media.
ASSERT - Angelman Syndrome Support Education & Research Trust
PO Box 505
Sittingbourne
Kent
ME10 1NE  01795 429061
01980 652617 (Helpline)
 01795 429061
 assert@walburns.freeserve.co.uk
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