BRITISH ECTODERMAL
DYSPLASIA SUPPORT GROUPEctodermal Dysplasia refers to a group of closely related conditions. The
Ectodermal Dysplasias are heritable conditions in whcih there are
abonormalities of two or more ectodermal structures such as the hair, teeth,
nails, sweat glands, cranial-facial structure, digits and other parts of the
body. The British Ectodermal Dysplasia (ED) Support Group offers support to
help those affected by ED to live a near-normal lifestyle. The group has the
following aims: - To offer support to other families affected by Ectodermal Dysplasia.
- To raise awareness of Ectodermal Dysplasia with professional workers,
particularly those dealing with newborn babies and other interested
individuals.
- To link families in similar situations and areas.
The Group produces a leaflet which gives information on the syndrome, its
symptoms and diagnosis and the group itself. The Group has links with the
National Foundation for Ectodermal Dysplasis in the USA which is an
international source of information.
British Ectodermal Dysplasia Support Group
Dryfesdale
108 Charlton Lane
Cheltenham
Gloucestershire
GL53 9EA  01242 231754
 http://www.nfed.org
| 
