BRITTLE BONES SOCIETY The Brittle Bone Society was founded by a group of families in 1971 and
subsequently became a registered charity. Its aims are to promote research into
the causes and treatment of brittle bone diseases, and to provide practical
support, advice and encouragement to patients and their relatives. Through the Society affected families can get in touch with each other and
share ideas on how to cope. Letters and telephone calls reassure them that they
are not alone. The Society organises local meetings and an annual conference
which enable families to meet and exchange ideas. A regular newsletter gives
advice on living with brittle bones. The Society advises on grants and
allowances, schooling and equipment and genetics. Some equipment is available
through the NHS but many children need specialised powered wheelchairs not
available through the NHS. The Society raises funds to meet these needs. The Society now has knowledge of more than 3,500 sufferers in all parts of
Britain and Ireland. Contact the Society for further information.
Brittle Bone Society
30 Guthrie Street
Dundee
DD1 5BS 01382 204446
01382 206771
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