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 | ME ASSOCIATION |
The ME Association was founded in 1976 by a few sufferers and carers who
came together for mutual support and to raise money for research into ME/CFS
(Chronic Fatigue Syndrome). Now a registered charity, the ME Association has
become the largest UK-based national ME/CFS charity, with 9000 members in the
UK and overseas, and over 80 local groups. Governed by a Board of Trustee
Directors, the day-to-day management is carried out by paid staff and
volunteers in co-operation with the Trustees who contribute their services on a
voluntary basis. Our wide-ranging remit makes us: - a medical research charity
- a support/membership organisation
- a self-help charity
- an information service and educational and awareness organisation
We provide - Self-Help and Support
- support services at Head Office dealing with a large range of
ME/CFS-related issues
- a strong local group network offering support, help and information a
range of special interest groups
- MEGA, a special focus group for young people with ME/CFS
- Information, Education, Advocacy
- Literature
- Information Line Listening Ear
- support and help outside office hours, every day of the year Perspectives
- a quarterly newsletter for members
- Advocacy and representation for DSS benefits, insurance, pensions,
employment and other issues
- Information for members, health professionals, media and the public
- Educational meetings, lectures, seminars for medical and other
professionals
- PR, Lobbying, Awareness
- Raising the profile and improving our public image
- Parliamentary lobby campaign for recognition
- Liaisons, alliances and co-operation with other relevant organisations
- Awareness campaigns and pro-active initiatives
- Medical Matters and Research
- Funding research
- Keeping abreast of research developments
- Distributing information on ME/CFS to the medical profession and the
general public
- The expertise of a Medical Director, medical advisor, specialist paediatric
advisor and a scientific and medical advisory panel
Our Mission - We aim to support, to help, to inform and to empower all those whose lives
are affected by ME/CFS by:
- providing information on ME/CFS to all who need it
- providing support for people with ME/CFS and their families on all
ME/CFS-related issues
- increasing public and professional awareness of ME/CFS
- representing people with ME/CFS at every level of decision making
- fighting for, and attaining, equal rights for people with ME/CFS in
- Diagnosis
- Treatment
- Employment
- Benefits
- Insurance
- and other issues
- retaining ME/CFS as a high-profile issue
- finding a cure
- raising money to fund research into the cause(s) and treatment of ME/CFS
- gaining public support for fundraising to meet challenges ahead
Our Vision - ME/CFS is fully recognised as a severe, long-term devastating illness, no
longer surrounded by misunderstanding and prejudice
- people with ME/CFS are afforded the same facilities and support as those
affected by other disabling illnesses
- all people with ME/CFS are treated with respect and dignity in a climate
where disbelief no longer exists
- all people with ME/CFS are offered help, information and support of the
highest quality
- all people with ME/CFS have access to medical support and assistance
- working in partnership with our members, we are respected, recognised and
listened to, in the dual roles of
- a mutual aid organisation
- a medical charity
so increasing our influence and ensuring that our objectives are achieved
ME Association
4 Corringham Road
Stanford Le Hope
Essex
SS17 0AH  01375 361013
 01375 360256
 enquiries@meassociation.org.uk
 http://www.meassociation.org.uk/
ME Association - Northern Ireland
28 Bedford Street
Belfast
BT2 7FE 02890 439 831
02890 439 831 |
