NATIONAL ADVISORY SERVICE
FOR PARENTS OF CHILDREN WITH A STOMA (NASPCS)The Charity For Incontinent And Stoma ChildrenThe main objectives of the National Advisory Service to Parents of Children
with a Stoma (NASPCS) are: to obtain statistics on the number of children with
serious bladder and bowel disorders; to provide a contact and information
service for both parents and professionals; to help parents understand the
practical day-to-day management of all aspects of coping with a child with
either a Colostomy, Ileostomy or Urostomy; to give advice on the incontinence
often encountered with bladder and bowel problems and try to give practical
information on the support available from the Social Services and other
agencies and to advise on educational problems. One area sadly lacking due to the fact that NASPCS is a relatively new
organisation is to contact teenagers who have coped for so many years without
this form of backup. To encourage them to become members, as their experience
of life could be invaluable to younger members facing similar situations. Membership is free to families and professionals. Our survival is dependant
upon fund raising and donations. Apart from the many information booklets and
leaflets that we have available we produce a quarterly newsletter, and several
videos for patients and carers. Conditions represented by NASPCS include the
following. - Cloacal Exstrophy
- Colonic/Intestinal Neuranal Dysplasia
- Ectopia Vesicae
- Exomphalos
- Gastroschisis
- Hirschsprung's Disease
- Imperforate Anus
- Prune Belly Syndrome
- Vater Association
The NASPCS produces leaflets on the above conditions and the following
booklets: My Child Has an Imperforate Anus, My Child Has Hirschsprung's
Disease, All about your Mitrofanoff, Ideas for Faecal Soiling, and Our Special
Children.
National Advisory Service For Parents Of Children With A Stoma
(NASPCS)
51 Anderson Drive
Darvel
Ayrshire
KA17 0DE  01560 322024
| 
