THE NEUROFIBROMATOSIS ASSOCIATION

Founded in 1981, the aims of the Association are:

to help not only those with neurofibromatosis but also their families through the employment of a nationwide network of professional Family Support Workers (FSWs). These FSWs are based mainly in Genetics Departments of major hospitals and are able to provide expert advice and support for people with both Nf1 and Nf2
to help improve clinical care for patients with Nf
to encourage the establishment of mutual support groups throughout the country to help counter the feeling of isolation felt by many people affected by Nf
to provide accurate and up to date information not only to the patients themselves but also to medical professionals, healthcare workers, teachers and others concerned in the care of those affected
to fund research.

Grants are made when funds are available and advertised in the Lancet. The grants are available only for Nf research and subject to peer review.

The Neurofibromatosis Association
82 London Road
Kingston upon Thames
Surrey KT2 6PX