 | PRADER-WILLI SYNDROME ASSOCIATION (UK) |
The Prader-Willi Syndrome Association (UK) was founded in 1981, and is run
primarily by parents of people with PWS in conjunction with medical
specialists. The association aims to provide support for parents and carers, to
promote knowledge and awareness of the syndrome amongst medical professionals
as well as the public, and to improve the quality of care given to people with
PWS. Information leaflets, handbooks, medical texts and papers are all made
readily available. The association actively promotes medical research by
funding specific projects and seminars. Regional groups within the association
work locally raising funds, spreading awareness of the syndrome, and providing
local support for individual members. Both medical research and care are very expensive, and donations and
sponsorship are vital for these and other aspects of the association's work. As
a registered charity, the value of donations made under deed of covenant are
increased considerably by the refund of tax. Covenant forms can be obtained
from the secretary of the association. All donations and offers of sponsorship
should be sent to her. Local groups too need help, not only with funding but
also with organisation and co-ordination of meetings and activities. And
individual families need the help that knowledge and understanding can bring.
Prader-Willi Syndrome Association
2 Wheatsheaf Close
Horsell
Woking
Surrey
GU21 4BP  01483 724484
 01483 724784
 http://www.pwsa-uk.demon.co.uk/index.asp
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