TAR SYNDROME SUPPORT GROUP / THROMBOCYTOPENIA ABSENT RADII SYNDROME SUPPORT GROUP

TAR Syndrome (Thrombocytopenia with absent radii) is a rare disorder characterised by a reduction of the number of platelets in the blood and bilateral absence of the radii (forearm bones). The TAR Syndrome Support Group is a small, parent-led group with limited funds. The aims of the group are as follows.

• To offer support to families affected by TAR Syndrome.
• To raise awareness of TAR Syndrome with professionals and other interested individuals.
• To link families in similar situations and areas.
• To give new families hope for their children's future through the shared experiences of older children in the group.
• To share information on equipment, benefits, relevant support organisations etc.
• To support families through increasing public awareness of TAR Syndrome by raising funds, organising events and publishing literature.

The Group publishes an annual newsletter and leaflets including: What is a blood platelet?, Heart Defects and TAR Syndrome.

TAR Syndrome Support Group / Thrombocytopenia Absent Radii Syndrome Support Group
40 Ann Beaumont Way
Hadleigh
Suffolk
IP7 6SA

01473 824324

Associated Medical Information