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TELANGIECTASIA SELF-HELP GROUP

In 1985 the Telangiectasia Self-Help Group was founded to maintain a register of sufferers and to put affected families in touch with one another. A newsletter is sent to all members on a regular basis informing them of developments in the treatment of this disease. The group is affiliated to the following support groups:

  • Contact A Family
  • Genetic Interest Group
  • British Coalition of Heritable Disorders of Connective Tissue.

Telangiectasia Self-Help Group
39 Sunny Croft
Downley
High Wycombe
Bucks
HP13 5UQ

0l494 528047
www.telangiectasia.co.uk
info@telangiectasia.co.uk

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